Study Summary

 

Study Title: SC.27 - Living with Cancer in the Time of COVID-19: A cohort study of the impact of the COVID-19 pandemic on cancer patients during treatment and survivors

Overview:

The current COVID-19 pandemic is significantly changing how Canadians live, work and interact with one another. In the area of healthcare, provincial cancer care agencies have had to develop pandemic plans for patient appointments, treatment and follow-up procedures that protect patients. This has resulted in delays and changes for surgery, treatment, and follow-up for cancer patients. However, some changes such as inclusion of virtual appointments may also be good and may turn out to be a useful change for the future.

 

    What is the purpose of this study?

The purpose of the study is to collect information regarding the experience that people living with cancer and cancer survivors have during this COVID-19 pandemic to understand how these experiences could be improved. The study is set to find out:

  • the effects on your quality of life, stress, relationships, and your health care.
 

    Why is this study important?

The goals of this study are to describe the experiences and difficulties that people living with cancer and cancer survivors have during the COVID-19 pandemic and to understand how these could be improved. This information will help researchers understand how to make cancer care from a distance better in the future.

 

    Who can participate in this study?

This study is for adults 18 years of age or older who currently have cancer or have had cancer in the last 10 years.

This study is for:
  • Adults
  • Canadians receiving care at a cancer centre or recruited through social media.
This study is not for:
  • Children
  • Long term survivors greater than 10 years.
 

    What can I expect?

You will be asked to complete 5 on-line questionnaires

  • at the start of this study
  • at 2, 4, 6 and 12 months

The first questionnaire takes 30-35 minutes to complete. The follow-up questionnaires will take about 20 minutes to complete.

If you agree, you may also be asked to participate in a telephone interview sub-study.

STUDY DESIGN

Consent

Enrollment

Complete Questionnaires at Beginning, 2, 4, 6 and 12 months

Consent to Substudy Interview

Interview within 6 months

 

    What are the risks?

There are no medical risks associated with this study.

 

    Are there costs?

There is no cost associated with participating in this study. You will not be paid to participate.

 

    How can I find out more or join the study?

You can call the SC.27 study toll-free phone line at 1-833-304-1130. You can click on the link below to go to the Electronic Study Information and Informed Consent Form for more details and contact information about this study or to start participating now.

 

For participants already enrolled on the study, if you would like to withdraw from submission of future surveys, please enter your email below and click ‘submit’.